DEBRA is the national charity that supports individuals and families affected by the genetic blistering skin condition Epidermolysis Bullosa (EB). It funds pioneering research to find effective treatments and, ultimately, a cure for EB and it provides care and support to improve the quality of life for individuals and families living with EB.


01344 771961
Fax: 01344 762661


Venue address
Debra House 13 Wellington Business Park
Dukes Ride
RG45 6LS

Service Details

Additional Information
DebRA is the national charity working on behalf of people in the UK with the genetic skin blistering condition Epidermolysis Bullosa (EB). It promotes research into the treatment of Epidermolysis Bullosa (EB) and works to relieve physical and mental distress amongst persons affected by the condition. DEBRA works to raise awareness of EB in the wider community, it works closely with specialist EB nurses to produce a range of publications and other materials which provide high-quality, reliable information on EB. It also provides bereavement support visits.
Referral information
Self referral by parents/carers, referral from specific agencies
Age Range Details
0 - 19 and adults
Age Range
0 years 0 months to 19 years 0 months
Some activities and family support services listed in our directory may be cancelled, postponed, or running in a different way due to coronavirus restrictions. Please contact providers to check for information about any changes.

Journey Planner

Address: Debra House  13 Wellington Business Park  Dukes Ride  Crowthorne  Berkshire