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Prader-Willi Syndrome Association (PWSA UK) is a registered charity and is the only organisation in the UK that is dedicated solely to supporting people with Prader-Willi syndrome (PWS). We support families, carers and professionals, in managing the impact of PWS, promoting transformational interventions, supporting positive,…
Area:
National
Telephone:
01332 365676
E-mail:
admin@pwsa.co.uk
Website:
www.pwsa.co.uk
Address
PWSA UK Suite 4.4¬ Litchurch Plaza,  Derby,  DE24 8AA
Williams Syndrome is a rare genetic disorder. Like Down's Syndrome it is caused by an abnormality in chromosomes, and shows a wide variation in ability from person to person. The Williams Syndrome Foundation is run for families by families. There are no paid fund-raisers and…
Area:
National
Telephone:
01732 365152
E-mail:
enquiries@williams-syndrome.org.uk
Website:
www.williams-syndrome.org.uk
Address
161 High Street,  Tonbridge,  Kent,  TN9 1BX
HemiHelp services are now being run by Contact - the charity for families with disabled children. Services running are the provision of information specifically for families with hemiplegia, online support group on facebook. Together with Contact we work to provide information and support services, raise…
Area:
National
Telephone:
020 7608 8700
E-mail:
support@hemihelp.org.uk
Website:
www.hemihelp.org.uk
Address
209-211 City Road, London,  EC1V 1JN
There are many types of upper limb deficiency, Reach aims to provide resources, support and practical advice and information, whatever our families tell us they need. Some children in Reach are missing all or part of an arm, others have partial hands or possible malformed…
Area:
National
Telephone:
08451 306225
E-mail:
reach@reach.org.uk
Website:
www.reach.org.uk
Address
Reach Charity Ltd Pearl Assurance House,  Tavistock,  Devon,  PL19 0BN
The Disabilities Trust is a leading national charity, providing specialist rehabilitation, care and support for adults with acquired brain injury, autism and physical disabilities, including those with very complex needs. They also offer education services for children with autism.
Area:
National
Telephone:
01444 239123
Fax: 01444 244978
E-mail:
info@thedtgroup.org
Website:
www.disabilities-trust.org.uk
Address
First Floor 32 Market Place,  Burgess Hill,  West Sussex,  RH15 9NP
Unique is a source of information, mutual support and self-help to anyone affected by any rare chromosome disorder including deletions, trisomy, balanced/unbalanced translocations, rings, inversions, duplications, tetrasomy, monosomy, triploidy, isodicentris, marker, mosaic, sex chromosome aneuploidy etc Unique is a source of information and support to…
Area:
National
Telephone:
01883 723356
E-mail:
info@rarechromo.org
Website:
www.rarechromo.org
Address
The Rare Chromosome Disorder Support Group G1 The Stables,  Oxted,  Surrey,  RH8 9EE
Get Kids Going! is a national charity which gives disabled children and young people up to the age of 26 years the wonderful opportunity of participating in sport. We provide them with specially built sports' wheelchairs so they can do: athletics, marathons, tennis, skiing, rugby,…
Area:
National
Telephone:
02074 818110
Fax: 02074 818150
E-mail:
info@getkidsgoing.com
Website:
www.getkidsgoing.com
Address
4 Chandlery House, London,  E1 8BH
Child Growth Foundation (CGF), is a leading UK charity focusing on the support and management of rare growth conditions affecting children and adults. They aim to support children and adults with growth related issues and their families, support research into greater understanding and management of…
Area:
National
Telephone:
02089 950257
Fax: 02089 959075
E-mail:
info@childgrowthfoundation.org
Website:
www.childgrowthfoundation.org
Address
21 Malvern Drive, Sutton Coldfield,  B76 1PZ
The Thalidomide Society was formed in 1962 by parents of children with congenital disabilities caused by the drug commonly known as thalidomide. Over fifty years later, the Society is still supporting its now adult thalidomide-impaired members and their families. The Thalidomide Society provides assistance and…
Area:
National
Telephone:
02072 520972
E-mail:
info@thalidomidesociety.org
Website:
www.thalidomidesociety.org/
Address
6 Abbis Orchard, Ickleford,  Hitchin,  Herts,  SG5 3TN
As a member-led organisation, our work is focused on achieving equality for Deaf people through community empowerment, membership and campaigning. Working with local Deaf and BSL Communities is crucial to the success of BDA campaigns and creates opportunities for Deaf people to develop, participate and…
Area:
National
Telephone:
02076 974140
Mobile: 07795 410724
E-mail:
bda@bda.org.uk
Website:
bda.org.uk/
Address
3rd Floor 356 Holloway Road,  London,  N7 6PA